The Pitch: Scleroderma Society of Nova Scotia
Scleroderma is a rare progressive and chronic connective tissue disorder that affects approximately 200 patients in Nova Scotia. Also known as “hard skin,” scleroderma forces the body’s immune system to attack its own tissues, which may lead to hardening and tightening of the skin and damage to internal organs. The Scleroderma Society of Nova Scotia (SSNS) is committed to supporting those living with the disease, by increasing knowledge and awareness, promoting health and wellness, and raising funds for research and patient support. SSNS is affiliated with Scleroderma Canada, a national registered non-profit charitable organization.
SSNS provides support to patients through a number of means, including the David Shea Memorial Patient Support Fund. This fund financially assists those who incur expenses as a result of living with scleroderma. Applications are available online at www.sclerodermanovascotia.ca. Other activities include monthly support group meetings for patients and their caregivers, an art therapy program, and information sessions held across the province.
The organization relies on donations to finance its activities. The main fundraiser is the Run/Walk in the Park, which will be held June 17, 2017 at DeWolf Park in Bedford. Last year more than 150 supporters attended the event, which raised $15,000. Details on this year’s 1K and 5K Run/Walk can be found online sclerodermawalkrun.ca/halifax.